As you probably figured out we are home. Steve was able to be dismissed from the hospital on Sunday. It was a long ride home but we made it. Tiffany and I took Blair to the oral surgeon Monday morning and she had all 4 wisdom teeth cut out. No picnic, she looks like a chip monk with purple cheeks. All 4 were impacted so it is just as well they all came out. She is doing ok. Pain killer and ice are her favorites right now. Jayce came to see us Monday afternoon when she got out of the hospital with her broken arm. She has a beautiful hot pink cast. She has calmed down quite a bit. The real story came out. Trey and Jayce took the mattress off Trey's bed and put it on the floor. Trey convinced Jayce to climb to the top of his dresser and jump off. When he found out that her arm was broke he thought he had killed her. Jennifer reassured him that she was going to be ok. Tom thought our house was like a nursing home, too many sick, injured people that needed attention.
We did get some unsettling news today. Steve's doctor called and said the test came back. They found cancer in this kidney also. The urologist that did the surgery talked to the Nephrologist that we will be working with and have talked with several times. They both agreed they think he can still go forward with the transplant. They did say that they are not the only ones that is making these decisions but they felt like we could proceed. The cyst that they have been watching was not cancer. It was on the back side where it didn't show up. Sounds like before, your kidney is in cased in fat and the cancer was still inside the fat on the kidney. So, not sure what the next step will be but we have a follow up in month with the urologist. Hopefully his sisters can go ahead with their testing for matches.
Please keep Steve in your prayers.
Tuesday, May 25, 2010
Sunday, May 23, 2010
Posted 5:30a.m.
When it rains it pours. Tom and Jennifer called me at 11:00pm last night to tell me they were headed to KC Childrens Mercy with Jayce. She broke her arm and the doctor in Maryville said it would probably need surgery. It is broke at the elbow where the growth plate is. They got to the hospital around 12:00 and they are planning on doing surgery today at noon. I got to talk to Jayce on the phone she was jumping and broke her arm. She seem pretty ok with it.
I am headed to the hospital to tell Steve about Jayce. Thought I better wait until morning.
Christy
When it rains it pours. Tom and Jennifer called me at 11:00pm last night to tell me they were headed to KC Childrens Mercy with Jayce. She broke her arm and the doctor in Maryville said it would probably need surgery. It is broke at the elbow where the growth plate is. They got to the hospital around 12:00 and they are planning on doing surgery today at noon. I got to talk to Jayce on the phone she was jumping and broke her arm. She seem pretty ok with it.
I am headed to the hospital to tell Steve about Jayce. Thought I better wait until morning.
Christy
Saturday, May 22, 2010
Posted 10:37pm
Steve was able to get a room on the floor today. ICU kicked him out they needed the bed for someone worse than him. He is not a happy camper and I can't say I blame him. His room came with a roommate that was very noisy.
Now he wished he would have just come home. He is doing pretty well. He was taken off his pain pump this morning and started taking oral pain meds. They have worked pretty well today. He thinks this surgery was as bad as the other one when they took the first kidney out. I told him this was better because the pain was under control better. Last time he was cut from top to bottom, this time he has 3 poke holes and about a 4 or 5 inch incision.
He was up and walking 3 times today. The last was about 5:00pm and he didn't feel good after that. I think he probably is pushing it a little too much. The hospital has been so full there is not enough beds for everyone so if things go good the next 12 hours I am thinking he will be coming home tomorrow.
We should here something next week about the kidney they sent off, they don't think it has cancer but they have to be sure. He is suppose to heal for 6 weeks and then I guess he will go from there. His creatinine is on the rise but they don't seem to be to worried about it. He had dialysis yesterday and today and he is suppose to skip tomorrow. That was an ordeal. I was very surprised, they don't seem to be as far a long as the center in St. Joe. They couldn't believe we do hemo home dialysis. Steve and I knew more than both the techs we have had the last 2 days, don't think that wasn't scary. Steve had to throw a little fit to be able to stick his self for the treatments. They weren't going to let him. Our diaysis instructor in St. Joe told him to never let anyone else access the fistula in his arm except himself. He threw his fit and we won.
I am tired so going to bed, will try and blog sometime tomorrow. Please keep praying that the transplant is in our very near future.
Love to all Steve and Christy
Steve was able to get a room on the floor today. ICU kicked him out they needed the bed for someone worse than him. He is not a happy camper and I can't say I blame him. His room came with a roommate that was very noisy.
Now he wished he would have just come home. He is doing pretty well. He was taken off his pain pump this morning and started taking oral pain meds. They have worked pretty well today. He thinks this surgery was as bad as the other one when they took the first kidney out. I told him this was better because the pain was under control better. Last time he was cut from top to bottom, this time he has 3 poke holes and about a 4 or 5 inch incision.
He was up and walking 3 times today. The last was about 5:00pm and he didn't feel good after that. I think he probably is pushing it a little too much. The hospital has been so full there is not enough beds for everyone so if things go good the next 12 hours I am thinking he will be coming home tomorrow.
We should here something next week about the kidney they sent off, they don't think it has cancer but they have to be sure. He is suppose to heal for 6 weeks and then I guess he will go from there. His creatinine is on the rise but they don't seem to be to worried about it. He had dialysis yesterday and today and he is suppose to skip tomorrow. That was an ordeal. I was very surprised, they don't seem to be as far a long as the center in St. Joe. They couldn't believe we do hemo home dialysis. Steve and I knew more than both the techs we have had the last 2 days, don't think that wasn't scary. Steve had to throw a little fit to be able to stick his self for the treatments. They weren't going to let him. Our diaysis instructor in St. Joe told him to never let anyone else access the fistula in his arm except himself. He threw his fit and we won.
I am tired so going to bed, will try and blog sometime tomorrow. Please keep praying that the transplant is in our very near future.
Love to all Steve and Christy
Friday, May 21, 2010
Posted 10:45a..m
I called ICU twice once at 2:00a.m. his nurse was great she said he was resting comfortably but his heart rate was low. She had called the doctor and he said it was ok. I called again at 5:00a.m. his nurse was not available but another nurse said he was doing fine. What else are they going to tell you that he is in terrible pain.
Blair and I could not get in to ICU until 8:30a.m. this morning. When we got to his room he was sitting up in the chair, pain was better but he had been vomiting. They had given him zofran twice and it didn't seem to work. They changed the med for nausea and now he is resting comfortably.
3 doctors have been in today. They are going to do dialysis today and hopefully that will help get rid of the anethsetic and make him feel better. Probably do dialysis today and tomorrow. They have him on fluid restriction now and did not give him much at all during surgery. 1 1/2 quarts per day is probably what he will be limited to. He is still in ICU, still no rooms available.
I called ICU twice once at 2:00a.m. his nurse was great she said he was resting comfortably but his heart rate was low. She had called the doctor and he said it was ok. I called again at 5:00a.m. his nurse was not available but another nurse said he was doing fine. What else are they going to tell you that he is in terrible pain.
Blair and I could not get in to ICU until 8:30a.m. this morning. When we got to his room he was sitting up in the chair, pain was better but he had been vomiting. They had given him zofran twice and it didn't seem to work. They changed the med for nausea and now he is resting comfortably.
3 doctors have been in today. They are going to do dialysis today and hopefully that will help get rid of the anethsetic and make him feel better. Probably do dialysis today and tomorrow. They have him on fluid restriction now and did not give him much at all during surgery. 1 1/2 quarts per day is probably what he will be limited to. He is still in ICU, still no rooms available.
Thursday, May 20, 2010
posted 12:o4a.m.
Today was hard. Steve and I, Blair, Tom and Jennifer got to the hospital about 1:00pm today. Emily had to work today she is coming down tomorrow. It was a little tough knowing that they were going to remove something that he was born with and have to have. Really scary!
Steve went to surgery at 4:45pm, he got out about 7:45pm. Everything went as expected they were able to remove his kidney laproscopic. Doctor is great but it was hard to leave. The hospital was full no rooms available. The doctor told me he would either spend the night in recovery or in ICU only because no rooms are available. He got ICU so of course we got to see him twice then they kicked us out. Only place I have ever been kicked out of.
His pain was bad when I saw him in recovery and finally they changed the meds and he got a pump. The next time I saw him it was a lot better. My plan is to call during the night. They gave me a number and the nurse was very good.
Time to get sleep, tomorrow will be here soon.
Today was hard. Steve and I, Blair, Tom and Jennifer got to the hospital about 1:00pm today. Emily had to work today she is coming down tomorrow. It was a little tough knowing that they were going to remove something that he was born with and have to have. Really scary!
Steve went to surgery at 4:45pm, he got out about 7:45pm. Everything went as expected they were able to remove his kidney laproscopic. Doctor is great but it was hard to leave. The hospital was full no rooms available. The doctor told me he would either spend the night in recovery or in ICU only because no rooms are available. He got ICU so of course we got to see him twice then they kicked us out. Only place I have ever been kicked out of.
His pain was bad when I saw him in recovery and finally they changed the meds and he got a pump. The next time I saw him it was a lot better. My plan is to call during the night. They gave me a number and the nurse was very good.
Time to get sleep, tomorrow will be here soon.
Tuesday, May 11, 2010
I missed posting anything in April, sorry!
This is the latest. Steve will be getting his remaining kidney out May 20th. They hope to remove it laproscopic with 3 holes and small incision. If for some reason they are not able to do this due to scare tissue from the first surgery they will have to make a large incision again same as first time.
This is the next step. Scary but has to be done before he can get a kidney. Once the kidney is tested and comes back with no cancer (which they don't think it has, just cyst) he will be activated on the transplant list. After the kidney is removed at least 6 weeks to heal, no heavy lifting for 4 weeks. After that we don't know. We have to put our trust in what they tell us do this, then this and hopefully the kidney transplant is not far off.
Two of Steve's siblings are being tested to see if they are a match. They have just started into the beginning testing and we are assuming more will be done as soon as he is activated.
The dialysis has gone pretty well. We had one little scare last week. He tried to take off too much fluid and starting cramping bad. I did the protocol for cramping but it didn't work, so we did it again and finally the cramps in his legs started easing up. It took Blair and I both to get this accomplished. I was about ready to just stop the treatment but things finally turned around. This made me very nervous.
He is now only taking 1 blood pressure med. Use to take 3. His blood pressure is lower than I have ever seen it sometimes I think it is too low. We asked the doctor about this because a lot of times it is running 90's over 60's when he is doing a treatment. This is when you run the risk of passing out. If this happens, I will freak. As long as he is not dizzy she says it is ok. Define dizzy!!!
I will try and do better about keeping this updated. There should be more to tell now the ball is rolling. Until next time. Pray for him and that this surgery goes well.
Steve & Christy
This is the latest. Steve will be getting his remaining kidney out May 20th. They hope to remove it laproscopic with 3 holes and small incision. If for some reason they are not able to do this due to scare tissue from the first surgery they will have to make a large incision again same as first time.
This is the next step. Scary but has to be done before he can get a kidney. Once the kidney is tested and comes back with no cancer (which they don't think it has, just cyst) he will be activated on the transplant list. After the kidney is removed at least 6 weeks to heal, no heavy lifting for 4 weeks. After that we don't know. We have to put our trust in what they tell us do this, then this and hopefully the kidney transplant is not far off.
Two of Steve's siblings are being tested to see if they are a match. They have just started into the beginning testing and we are assuming more will be done as soon as he is activated.
The dialysis has gone pretty well. We had one little scare last week. He tried to take off too much fluid and starting cramping bad. I did the protocol for cramping but it didn't work, so we did it again and finally the cramps in his legs started easing up. It took Blair and I both to get this accomplished. I was about ready to just stop the treatment but things finally turned around. This made me very nervous.
He is now only taking 1 blood pressure med. Use to take 3. His blood pressure is lower than I have ever seen it sometimes I think it is too low. We asked the doctor about this because a lot of times it is running 90's over 60's when he is doing a treatment. This is when you run the risk of passing out. If this happens, I will freak. As long as he is not dizzy she says it is ok. Define dizzy!!!
I will try and do better about keeping this updated. There should be more to tell now the ball is rolling. Until next time. Pray for him and that this surgery goes well.
Steve & Christy
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