June 29th
I know it has been a while since I have put anything on here. I had a good amount typed one morning this week and lost it all before I could post it. I think it had something to do with the storm we had.
Steve went to KU today for another appointment. They are happy with his blood work, it is staying stable. He has a heart test coming up. After transplant once a year a heart test needs to be done. Shortly he will be on 2 week appointments and they even talked today about when they would turn him back over to his doctors in St. Joe. They didn't give a date but a least they are talking about it. It will be nice before the weather gets cold and snowy just to go to St. Joe.
We seem to get over one hurdle and another comes up. We are working on anit-rejection meds cost and the insurance company. Holy cow how can something so wonderful such as getting a kidney be such a miracle and the meds cost so much money. Insurance and drug companies have all the power.
Christy
Wednesday, June 29, 2011
Wednesday, June 8, 2011
Wednesday June 8
Steve's appointment at KU went well this week. He was able to get rid of one more of the medications. His blood pressure is doing good and will be cutting back or stopping the blood pressure meds soon. His creatinine is 2.4 and they are hoping it will get below 2.0. He is feeling pretty well, still gets worn out easy. He has driven a few times but doesn't like the gravel roads too bumpy.
His day consist of walking out to the shed tinkering around and walking back to the house. He has driven the ranger around the farm some and seems to get a long with that ok. At least he has his driving privileges.
Will let you know how next week appointment goes. He will be getting the steins out this month, will see how that goes. They say he won't feel bad at all after doing this.
Christy
Steve's appointment at KU went well this week. He was able to get rid of one more of the medications. His blood pressure is doing good and will be cutting back or stopping the blood pressure meds soon. His creatinine is 2.4 and they are hoping it will get below 2.0. He is feeling pretty well, still gets worn out easy. He has driven a few times but doesn't like the gravel roads too bumpy.
His day consist of walking out to the shed tinkering around and walking back to the house. He has driven the ranger around the farm some and seems to get a long with that ok. At least he has his driving privileges.
Will let you know how next week appointment goes. He will be getting the steins out this month, will see how that goes. They say he won't feel bad at all after doing this.
Christy
Wednesday, June 1, 2011
June 1st 9:30pm
Steve had his first follow up appointment at KU yesterday. It went pretty good. He was able to cut down one of the anti-rejection meds and stop one of the other medications all together. He still has some fluid on and he is still taking lasix to get rid of it. They told him to take his pill then make sure his feet are proped up high. I think this is helping.
He didn't feel as good today as he has but I think he is going to have these days. He is still having trouble sleeping. Goes to bed and sleeps a couple hours then is up and down the rest of the night then is ready to sleep about 6:00am kinda of like a baby with colic. His diet has changed some. The opposite of what it use to be. They are wanting him to increase dairy with every meal. So bring on the ice cream.
His next appointment is next week. We will see how his numbers look then.
Christy
Steve had his first follow up appointment at KU yesterday. It went pretty good. He was able to cut down one of the anti-rejection meds and stop one of the other medications all together. He still has some fluid on and he is still taking lasix to get rid of it. They told him to take his pill then make sure his feet are proped up high. I think this is helping.
He didn't feel as good today as he has but I think he is going to have these days. He is still having trouble sleeping. Goes to bed and sleeps a couple hours then is up and down the rest of the night then is ready to sleep about 6:00am kinda of like a baby with colic. His diet has changed some. The opposite of what it use to be. They are wanting him to increase dairy with every meal. So bring on the ice cream.
His next appointment is next week. We will see how his numbers look then.
Christy
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