January 26th
Just a quick note. We found out last week from the transplant coordinator that Steve has 6 hundred and some days already on the transplant list and she says most people are transplanted by high 7 hundreds. So I'm thinking another 100 days and he will be getting close. So it looks like he will be closer to 2 years when he gets the kidney.
We have changed insurance so that has been one headache after another. He has finally been approved by the new insurance for transplant. It is coming up on 2 years this spring so he will have to have some test ran again, heart, ct scans, lower gi, and whatever else they feel like poking and prodding. When we talk about this he sounds like a grizzly bear but after a couple of days he always says "I better go ahead and get that done, I don't want this to keep me from getting a kidney". Sometime this seems like it will never end.
Instead of a heart on valentines day maybe a kidney.
Love Christy
Wednesday, January 26, 2011
Wednesday, January 5, 2011
January 5, 2011
Can you believe we are in a new year again. Sorry I have not been better about updating the blog. Still not much to tell. We have not received any calls at all from KU. Very depressing!!
We have a lot going on in our lives that keep us busy so we try not to think getting a kidney all the time. Steve has kept himself busy with building a huge shed at our house. It has been a slow process due to the weather. Today the temperature was around 40 and they were able to get a lot done. We have very generous people helping build it.
Blair is in her last season of basketball as a Northeast Nodaway Bluejay. I try not to think about that ending, it is one of my favorite things to do, watch her play ball. She will be starting a new chapter in her life when she graduates this spring. Her plan is to go to nursing school. She has looked at different schools but right now she has been accepted at NWMSU and plans to start her first year there.
We had a good Christmas with the entire family. The grand kids were so excited and loved all their presents. They are so funny, it makes you wonder what are they really thinking.
Emily's baby is due in about 6 weeks. She is ready for he or she. It is going to be a surprise. They decided not to find out what it is. They want the event to be a surprise.
We still go monthly to the dialysis center for checkups. The doctors are all great. It is just a hurry up and wait game. Steve has been active and waiting 20 months on the transplant list. The doctors ask him why he is at his appointment, they say he is to healthy other than not having any kidneys. We keep getting all the signs that this is going to happen, Emily has had a couple of dreams that he is getting a kidney, I had a long time co-worker pass away in Massachusetts and she was an organ donor, the other day at my work I verified an order for a transplant facility in California. Just keep sending the signs.
Maybe he will either get a new grandchild or a kidney for his birthday or both. Let's hope.
Love Steve & Christy
Can you believe we are in a new year again. Sorry I have not been better about updating the blog. Still not much to tell. We have not received any calls at all from KU. Very depressing!!
We have a lot going on in our lives that keep us busy so we try not to think getting a kidney all the time. Steve has kept himself busy with building a huge shed at our house. It has been a slow process due to the weather. Today the temperature was around 40 and they were able to get a lot done. We have very generous people helping build it.
Blair is in her last season of basketball as a Northeast Nodaway Bluejay. I try not to think about that ending, it is one of my favorite things to do, watch her play ball. She will be starting a new chapter in her life when she graduates this spring. Her plan is to go to nursing school. She has looked at different schools but right now she has been accepted at NWMSU and plans to start her first year there.
We had a good Christmas with the entire family. The grand kids were so excited and loved all their presents. They are so funny, it makes you wonder what are they really thinking.
Emily's baby is due in about 6 weeks. She is ready for he or she. It is going to be a surprise. They decided not to find out what it is. They want the event to be a surprise.
We still go monthly to the dialysis center for checkups. The doctors are all great. It is just a hurry up and wait game. Steve has been active and waiting 20 months on the transplant list. The doctors ask him why he is at his appointment, they say he is to healthy other than not having any kidneys. We keep getting all the signs that this is going to happen, Emily has had a couple of dreams that he is getting a kidney, I had a long time co-worker pass away in Massachusetts and she was an organ donor, the other day at my work I verified an order for a transplant facility in California. Just keep sending the signs.
Maybe he will either get a new grandchild or a kidney for his birthday or both. Let's hope.
Love Steve & Christy
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