Steve had an appointment yesterday at KU. We talked about the cancer in this kidney and it was approximately the size of a marble, Dr. thought had not been there long at all. The surgeon released him. We then walked over to the transplant office and talked with Wendy our transplant cooridnator. She said she would now activate Steve. He has been on the transplant list since April of 2009 and has been building points. Which means he has 14 months of time already accumulated. She says the average weight for a kidney is 16 months. She says she can't say for sure but she thinks he will get a kidney sometime this summer. We can only hope. He is scheduled for some heart test just to keep everything up to date for the big day.

Prayer, prayers, prayers...

Christy

We did not get good news today. Linda was also rejected due to blood in her urine. Both Linda and Vick have been rejected as donors. I have made a couple of calls to KU and St. Joe today. Waiting to her back from them. Right now don't know where we go from her. We are trying to be positive, these things are happening for a reason. Just don't know what it is yet. Maybe trying to make us have better patiences. Will let you know more when we find out anything.

A new week. Vickie is going to the urologist this week to see what they say and possibly go also to Steve's Nephrologist. We will wait and see what the urologist has to say.

Today was the first time Steve has really noticed fluid he said his hands were tight. He is really trying to watch what he eats and drinks. We got his first blood work results back this week since removing his other kidney. Potassium and phosphors were both up a little but that was to be expected since he is recovering from surgery. He is doing dialysis 6 days a week but they had to up his solution from 20 liters to 23 to get better numbers when doing the blood work. His iron stores are back down and so was his hemoglobin. He will get epogen shots twice a week to keep the hemoglobin up and a dose of iron through IV when he goes to his next dialysis check which will be next week. No big suprise. Everything has to adjust now and things should balance out. The food and fluid intake is very important now that he does not have any kidneys.

The up side if there is an upside. No getting up in the night to pee, no stopping when traveling to pee, etc... Now we have to make him stop when we have to go.

Linda will start her test Thursday and Friday. Hopefully Friday we will have some good news.
Keep the prayers going that Linda will get through all her test.

Christy

Vickie has been getting tested to be a donor for Steve. She did some testing on Monday and went back again today and everything was going good they said she was a perfect match. She has had several test and all looked good until today. They discovered blood in her urine. This brought all test to a halt. She is not completely out yet but she has to find out why the blood is showing up. She was very upset, she was ready to do this. She now has to see a urologist. Steve's urologist in St. Joe said he would be happy to help so she is going to set up an appointment with him. They have already looked at her kidneys and said they look good. Steve's urologist said blood shows up sometime for no reason doesn't mean anything is wrong. So the transplant coordinator is calling Linda and she is going to start her testing now.

This is why I have always said this is like a rollercoaster for eveyone. We are still hoping everything will turn out ok, but we will just have to wait and see. Hurry up and wait.

Not much more to tell you but hope to have good news before long.

Christy