Steve had an appointment Friday at KU for an another ultra sound. Everything was the same no change according to the doctor. I was able to watch this again and it was even a better picture than last time. I told the tech that the cysts look like a bubble and he said that is exactly what they are a bubble most of the time water filled. He is going to do another ultra sound in September to compare it again. Still planning on taking the kidney out in the fall unless it fails sooner than it will have to come out then.

His creatinine was 5.4 Monday and his kidney is working at 12%. 10% is where you go on dialysis unless you are feeling bad. This last month he has been very tired and worn out. He is still having headaches at least once a week. Dr. Brown decreased one of the blood pressure meds and added a new one. Now he is on 3 blood pressure meds. If he continues to have headaches I think shortly she will be sending him to a neurologist. He did have a CT scan of the head back in January and it didn't show anything. When they ask you what did they see in your head what is the correct answer. No they didn't see anything, that's not good. (this is always a funny joke with the doctors)

Every time we go we get a new piece of information. Dr. H seem to think that Steve won't be able to do home hemo dialysis. When you don't have any kidneys you have to be extremely careful of your fluid intake and this is pretty tricking doing dialysis at home. Although Dr. H says he is not the expert on dialysis. I think this will be trial and error for a while. He thinks he will have to drive to St. Joe every other day. If this is true we may need help with transportation. Not everyone feels well enough to drive themselves. He also said if the kidney fails first before the fall they would take it out and hopefully he wouldn't have to be on dialysis more than one month. Steve and I just looked at each other and said "what do you mean"? He said he hoped he would be able to get a kidney in that first month or two. We told him the transplant doctors said he would have to wait 1 1/2 to 2 years before he could get a transplant. Dr. H said they transplanted a women's liver who had an active renal cell cancer. We said we would be making a phone call to our case worker. Dr. H said don't rat me out. We told him we wouldn't. Now we are thinking we need to talk to the case worker and maybe set up an appointment with Dr. Duchene, he is on the transplant team and is a Urologist in the same group Dr. H is.

I think it is a whole lot of politics or who you know. Why wouldn't be? We will be checking this out for sure.

Take care any advise politics let me know. Keep praying.

Emily's wedding coming up July 25th invitation will be going out soon.
Love Steve, Christy and girls.