I know it has been a while and I am sorry, we have been so busy. Blair is playing ball and we have been enjoying going and watching her play (Go Bluejays). They lost their first game last night. Championship game in the South Harrison tournament. 2nd place is still good. Blair got herself a nice shiner on her eye. Three girls went for the ball and one of her team mates head hit her cheek. You talk about a goose egg instantly. She had to set out the 3rd quarter and went back in in the 4th. I took her the next day (Friday) to have it looked at. They xrayed her face to make sure it wasn't fractured. The swelling is going down but she is black and purple. She really looks bad. Way to use your head Blair.
As for Steve he is doing pretty well. This week he will be training to stick him self with the needles. Training to access the fistula has been a long process. We started with this Nov 10th and are still doing it we don't think it will be done until the end of the month. Others have taken him so I can work. Thanks to Don, Seth, Kurt, Gary, Mike. Emily has come to the house and got him started and I finished it when I got home from work. It has helped me out a lot. I left him in the hands of 3 people the other day to get the dialysis started and when I got home they were laughing and alarms were going off on the machine. I can't leave him with anyone. It is going to probably take another 2 weeks to get this completed.
We went to KU for a visit with the Nephrologist on the transplant team and talked with him. He was surprised to see us. We said we had not heard from them so we decided to come see him to find out where we stand. He was very nice and walked us over to the transplant unit. We met our new case worker. They have had turnover in this department and we think this is why we have not heard from them. She introduced herself and actually Steve's record and chart was in her stack of transplants and not too far into the pile. The doctor said they would discuss Steve's case again soon but he would probably have to wait the full 2 years before transplant. We are scheduled for the first of February for the CT scan with contrast and discuss a time to take out the other kidney. Now seems to be do dialysis, and wait. Hurry up and wait. It was a year December 17th since he had surgery. We don't want to wish our lives away but we are hoping 2010 goes quickly.
I will try and do better about blogging on this thing.
Love Steve, Christy & Blair
Sunday, January 17, 2010
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Christy,
ReplyDeletemaybe now he'll realize that he really can't "live" without you!! LOL. I just wish that we lived closer, and maybe I could help...I love this type of medical stuff! Anyway, glad things are going good. Praying for you all (Blair's eye too).
Crystal & Kevin